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In Conversation with Dr. David Hodgson: A Progress Report of His First Five Years
And Looking Ahead to His Next Five as POGO Medical Director and Chair in Childhood Cancer Control
In November 2021, Dr. David Hodgson (DH) began a second five-year term as POGO Medical Director and Chair in Childhood Cancer Control at the University of Toronto. In conversation, he shares highlights of his very productive first term, 2016 – 2021.
Q: Data-driven quality improvement is one of the five goals of POGO’s Childhood Cancer Care Plan. What initiatives have you undertaken to tackle this pressing priority?
DH: Well, for POGO to drive forward improvements in the childhood cancer system, we need to listen to our clinical partners and families to understand what the needs are, help develop and improve programs that meet those needs, and measure how well we are doing in that mission.
I felt that while POGONIS and our other data holdings are among POGO’s strengths, they were underutilized. So, over the last five years, we published and made available significantly more childhood cancer data to help clinical stakeholders and researchers understand the current state of childhood cancer in Ontario.
POGONIS is POGO’s active cancer registry initiated over 30 years ago to capture diagnosis, treatment and outcome data for children treated at the five specialized childhood cancer programs in Ontario.
We’ve also taken steps to strengthen data quality by implementing automated quality checks to immediately identify possible errors.
POGO produced two provincial childhood cancer surveillance reports (2018 and 2020) making Ontario the only province to publish searchable data regarding the incidence, prevalence and outcome of childhood cancer for different childhood cancer subtypes. In 2020, we saw the first-ever inclusion of POGONIS-derived childhood cancer statistics in the Ontario Cancer Statistics report, and we contributed to the national Cancer in Young People in Canada (CYP-C) Data Tool.
For hospitals, we provided the first POGO Quality Indicators Report, which allowed them to see information such as the type of cancers they care for, wait times and clinical outcomes compared to the province as a whole.
As a result of this work, data is much more available to hospitals, system planners and researchers to undertake activities such as assessing the feasibility of conducting a research study, or understanding the provincial patterns and trends of childhood cancer so the system can be prepared for the future.
Q: What other improvements have been made to POGO’s data?
DH: We have improved the data for specific POGO programs to ensure they are serving children with cancer and survivors in the best way possible. For over 20 years POGO has managed a long-term follow-up program for survivors of childhood cancer through the POGO AfterCare Program delivered in seven clinics across Ontario. We worked with these clinics to update the data collected so that we can assess the impact that these clinics have on survivor care and inform continuous improvement.
Q: Looking ahead, what are your plans for further improvements in data-driven quality?
DH: It is important that we continually work with our clinical and research partners to ensure that we are facilitating their work. Now that we have made these changes to our data collection and reporting, we have to be sure that we are not just collecting data for its own sake. We want to be able to inform clinical programs and research that have a clear path to improving the outcome for children with cancer. This means building collaborations that enhance the clinical and policy relevance of our data.
One great example is the work that the POGO analytics team and our Technology Advisory Committee is doing with Dr. Pechlivanoglou at SickKids to facilitate access to innovative new treatments for children with cancer by developing policy advice for government. This work involves input of clinical experts, access to high-quality data and analytic expertise, and an understanding of the regulatory environment. Any one of these on its own would not be enough, but working together with our clinical and research partners across Ontario, we can make progress that would not be possible without bringing together all the pieces of the puzzle.
I would also like to increase the utility and variety of data holdings we can use and make available to others, and redesign the POGO Research Unit to better support the deliverables of our Childhood Cancer Care Plan.
Q. Survivorship is near and dear to your heart. Tell us about your future focus for the POGO AfterCare Program for childhood cancer survivors.
DH: The POGO AfterCare Program was formally established in 2001 with clinical collaboration of seven clinics throughout Ontario. Developed at a time when few survivors were receiving adequate follow-up care, the initial strategy was to recall and retain as many survivors as possible. More recently, we have worked to integrate the concept of “right care in the right place” into the model of AfterCare.
We recognize that during treatment, POGO Satellite Clinics can provide excellent care for selected patients and problems without requiring the patients to travel to their primary treating hospital. The same can be true for AfterCare. Very few of the tests required by survivors are so high-tech that they need to be done in the primary treating hospital. But the major challenge is ensuring that we can provide the multidisciplinary care that some survivors need, particularly access to mental health supports, which I think are in very short supply. My goals are to ensure survivors with the highest risk for complications are able to access the clinics and receive care appropriate to their situation, and develop a sustainable strategy that better incorporates patients’ primary care providers so that the ever-growing number of survivors have sustained access to appropriate care.
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In addition to his role as POGO Medical Director and POGO Chair in Childhood Cancer Control at University of Toronto, Dr. David Hodgson is also a radiation oncologist at Princess Margaret Cancer Centre with a cross-appointment to the Division of Hematology/Oncology at The Hospital for Sick Children. He is a professor in the Department of Radiation Oncology at the University of Toronto. He was first appointed as POGO Chair in Childhood Cancer and Medical Director in November 2016. Read his bio
Dr. Hodgson Reappointed as POGO Medical Director and Chair in Childhood Cancer Control
Pediatric Oncology Group of Ontario is delighted to announce the reappointment of Dr. David Hodgson as POGO Medical Director and the POGO Chair in Childhood Cancer Control at the University of Toronto. He began his second five-year term in November 2021 after a very productive first term (2016–2021).
Dr. Hodgson’s stellar accomplishments, expertise and experience in the care of children with malignant disease and pediatric cancer control have strengthened POGO’s many efforts to champion childhood cancer control and POGO’s mandate to advance pediatric cancer care and control in Ontario and internationally.
Dr. Hodgson is an internationally-recognized pediatric radiation oncologist who has made significant clinical and research contributions through his role at SickKids and his work at Princess Margaret Cancer Centre where he is the Site Group Lead for Pediatrics in the Department of Radiation Oncology and the Director of POGO’s Adult Pediatric AfterCare Clinic. He is a Professor in the Departments of Radiation Oncology, and Health Policy Management and Evaluation at the University of Toronto. In addition to practicing radiation oncology in the lymphoma and pediatric site groups at the Princess Margaret Cancer Centre, Dr. Hodgson serves on the Hodgkin Lymphoma Steering Committee of the Children’s Oncology Group and as a member of the Childhood Cancer Survivorship (CCSS) External Advisory Board. He is the author of over 100 manuscripts in the field of lymphoma and long-term survivorship, and his work has been cited in publications in five languages, including the NIH President’s Cancer Panel Report, and the Strategic Plans of the Department of Veterans Affairs and the UK National Health Service.
POGO created the linked position of POGO Chair in Childhood Cancer Control and Medical Director in 2000 so that Ontario would always have dedicated, seasoned, visionary leadership to ensure a well-integrated, evidence-based cancer delivery system for children with malignant disease. POGO works collaboratively with all stakeholders to implement this vision, generating successive long-range childhood cancer care plans that have, over many years, greatly enhanced Ontario’s childhood cancer care system.
POGO believes the Chair and Medical Director must lead with extraordinary wisdom and charisma to achieve informed and whole-hearted consensus among providers, hospitals and other key stakeholders. Dr. Hodgson brings to POGO tables not only an academic outlook, clinical acumen and a unique grasp of research, education and healthcare delivery savvy, but also the rare ability to ignite a passion to work on behalf of the population and to inspire collaboration. Dr. Hodgson holds the central role in POGO’s medical directorate—responsible for maintaining the keen interest and participation of the professional pediatric oncology community in endeavours that ensure a continuing state-of-the-art system.
Dr. Hodgson reports on his first five years and plans for his next five.
Nurse Practitioner is POGO’s Provincial Lead in Pediatric Oncology Nursing
Denise Mills is a Master of Nursing, Pediatric Acute Care Nurse Practitioner, who began her nursing career over 20 years ago. She is one of those rare people with a true passion for what she does. In fact, when asked about her work, she says, “it’s a privilege to care for a child with cancer.” More than likely, it is this enthusiasm and her significant training, experience and expertise that, in 2018, led to Denise being chosen as POGO’s provincial clinical lead in pediatric oncology nursing.
Denise’s strong interest in multidisciplinary pediatric oncology education ensures the nursing perspective informs all aspects of POGO’s work in system planning, service delivery, quality improvement, education and research.
“I am proud of the work I have been able to participate in at POGO that contributes to our mission,” Denise says. “This includes partnering with Camp Oochigeas to host a retreat for pediatric oncology healthcare professionals across the province to share and learn about resilience; and bringing the nursing voice to POGO’s organizational strategy, programs and work on clinical practice guidelines as a member of POGO’s supportive care committee. I am also humbled to work closely with the POGO Interlink Nurses across Ontario who care for and support patients, and their families, throughout their cancer journey.”
Since her first introduction to POGO in the mid-1990s, Denise has been an avid member of several POGO committees and contributor to many POGO initiatives. She has been actively involved in the planning committees of several POGO multidisciplinary symposia on childhood cancer, including the 2018 Pre-Symposium Nursing Seminar, and has been a member of the POGO Board of Directors. Denise now co-chairs the POGO Nursing Committee with Brennah Holley, a nurse educator at CHEO. In 2020, the Nursing Committee presented two webinars: Supporting Children through COVID-19 and Good Grief! Fostering Healthy Grief in Ourselves and Those We Support.
Denise’s research interest is in patient/family education and she is a recipient of a POGO Seed Grant that funded her published study (2021) Improving Quality and Consistency in Family Education Prior to First Discharge Following a Pediatric Cancer Diagnosis. Denise has contributed to quality improvement and innovation projects, she sits on many prestigious committees, including the Children’s Oncology Group’s (COG) Nursing Steering Committee as the chair of the education sub-committee, and is a protocol nurse for the COG Neuroblastoma and Renal Committee. She has addressed delegates at numerous conferences, contributed countless poster presentations globally and is a member of several professional associations.
Denise Mills is seconded to POGO (two days a week) from McMaster Children’s Hospital, Hamilton Health Sciences Centre and actively participates in leadership roles at the hospital.
LifeLabs and POGO: More than a Corporate Partnership
From our first meeting with LifeLabs, we knew we were entering into a relationship that would go beyond the typical corporate sponsorship, but we had no idea how rich the collaboration would turn out to be.
In August 2017, LifeLabs pledged $200,000 to POGO, becoming the “Proud Partner” of our Pajamas and Pancakes fundraising campaign. Over the past four years, that pledge has turned into a total of $276,149.83 (to date!), and our relationship with LifeLabs and its employees has evolved and grown greatly over that time. Together, we are improving patient care and transforming the cancer journey for children, youth, their families and survivors in Ontario and beyond.
Raising Funds and Building Awareness
LifeLabs’ endorsement of POGO’s Pajamas and Pancakes Program, a fun and flexible do-it-yourself fundraiser, has not only helped POGO raise more than $276K over the years (including fundraising campaigns generated from their own staff!), but also involved a widespread advertising campaign on GO trains and other media across the GTA to help raise awareness about the program and childhood cancer.
Their annual investment in the POGO Multidisciplinary Symposium has helped our healthcare professionals remain at the forefront of the rapidly advancing field of pediatric oncology.
Supporting Families
As an organization that has been committed to building a healthier Canada for over 50 years, LifeLabs understands the toll cancer treatment can take on our families. In 2019, together with London Health Sciences Centre, we piloted a drop-in blood collection program at select LifeLabs service centres to make it easier for families with children fighting cancer to access lab testing that is required to inform treatment decisions. Lab results were available within 12 hours, saving families both time and money.
“We know that when LifeLabs and its employees contribute to POGO, we are helping children and families access the best available care and supportive services during a very difficult time,” says Charles Brown, President and CEO, LifeLabs. “One of LifeLabs’ core values is caring and our employees live that value by supporting incredible organizations in communities across Canada every day.”
Getting Involved
Whether they are attending POGO events or volunteering at community events to benefit our families across Ontario, LifeLabs’ employees go the extra mile. In 2019, the LifeLabs’ Sudbury Fun Day held at the POGO Satellite Clinic in the Northeast Cancer Centre brought games, crafts, PJs, gift cards and smiles to over 30 families in treatment. This year, 81 employees signed up for the Toronto Women’s Run with all funds raised benefitting POGO and the families we serve.
At POGO, we value our partnerships and we are inspired by our passionate donors who share our vision. Thank you LifeLabs!
Written by Lynn Wilson, POGO’s Chief Development Officer responsible for the planning and management of POGO’s fundraising, communications and government engagement initiatives.
Support from LifeLabs has helped provide financial assistance to families so they can pay for out-of-pocket costs associated with their child’s treatment, support survivors with customized school and work counselling when their disease or its treatment has left them with learning challenges, and fund promising research that examines the impact of childhood cancer and its treatment.
Music heals and can change your life
Ten years ago, I was diagnosed with a papillary brain tumour of the pineal region. I went through three surgeries, a lumbar puncture and thirty treatments of radiation at CHEO and SickKids. I am 21 now.
Since I was young, music has been important in my life. When I was in the hospital for cancer treatment, I would associate different doctors, nurses and family members with songs. I also sang to help me through tough times. In fact, when I woke from the third surgery, my family and doctors were surprised to find me singing!
And it’s not just me. Neurological researchers have found that music reduces the stress hormone cortisol. It releases dopamine and serotonin into the brain, helping you relax and stay focused. And it stimulates oxytocin—a hormone related to positive, happy feelings. Studies have also shown that music can help people process their feelings and change their mood completely.
Try it yourself! When someone you know is in a bad mood, try playing one of their favourite songs to see how they react. It might seem like a small thing, but as mentioned above, music can improve your mood and your whole outlook.
Written by Ariane Delorme
Mon nom c’est Ariane Delorme et dix ans passés, j’ai été diagnostiqué avec une tumeur cérébrale papillaire de la région pinéale. J’ai dû subir trois chirurgies majeures, une ponction lombaire, et trente traitements de radiations à CHEO et à Sick Kids. J’ai vingt et un maintenant.
Depuis un jeune âge, la musique est devenu très importante pour ma vie. Lorsque je me retrouvais à l’hôpital pour mes traitements, j’associais des chansons aux docteurs, infirmières et membres de ma famille. Je chantais aussi pour m’aider à passer au travers des temps difficiles. Je me suis même réveillé de la troisième chirurgie en chantant! Ceci a laissé mes docteurs ainsi que ma famille surpris.
Ce n’est pas seulement moi. Les recherches en neurologie ont découvert que la musique réduit le cortisol, qui est un hormone de stress. Ça relâche la dopamine et la sérotonine dans le cerveau, qui aident à se détendre et rester concentrer. Ça stimule aussi l’ocytocine. Une hormone reliée aux pensées et sentiments positifs. Les études ont aussi montré que la musique peut changer l’humeur complètement des gens.
Essaie toi-même! Lorsque quelqu’un vous connaissez est pas dans la meilleure humeur, essais de jouer l’une de leurs chansons préféré pour voir comment ils réagissent. Ça semble peut-être comme rien, mais comme mentionné ci-dessus, la musique peut améliorer votre humeur et votre perspective.
Écrit par Ariane Delorme