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We Are All Storytellers: Discovering the Power of Knowing and Sharing Your Story

Posted on December 3, 2015 by admin


Presentation Description: 
“Facts lead to knowledge, but stories lead to wisdom.” – Dr. Rachel Remen

Many childhood cancer survivors may not realize that they are living an amazing story or know how to begin telling it. This fun and interactive session drew on Mike Lang’s and Raymund Ong’s own personal experiences, as well as short digital stories and murals created by other cancer survivors, to explore the idea of storytelling as it relates to cancer and our lives in general. The goal of the session was to empower and inspire survivors to tell their stories so that the wisdom they have gained from their painful (and incredible) life journey can be shared with others who need it.

Telling Their Story: Video from the 2015 Survivor Conference
Five attendees of the 2015 Ooch/POGO Survivor Conference shared their perspectives on survivorship; the challenges and obstacles they faced, the effect their diagnoses had on their lives and how they’ve found hope, inspiration and fulfilment. These individuals shared their stories in the hopes that they will resonate with other childhood cancer survivors, who in turn may choose to tell their own.

Video Credit: Michael Lang, Survive & Thrive Expeditions Ltd.

Speakers:
Michael Lang, MSc
Executive Director, Survive & Thrive Cancer Programs
Specialist, Person Centred Care Integration, AHS CancerControl
Research Assistant, University of Calgary

Raymund Ong
Founder, C4 Murals

Posted in 2015 Survivor Conference | Tagged 2015 survivor conference, childhood cancer survivors, survivorship

Life After Childhood Cancer – A Conference for Survivors

Posted on August 27, 2015 by admin

From setting life goals and dealing with the long-term health effects of treatment, to telling a new love interest about their experience with cancer, survivors of childhood cancer may struggle with many issues.

From October 16 – 18, 2015, POGO and Camp Oochigeas will present Life After Childhood Cancer, the third POGO survivor conference to address key issues survivors themselves have identified as being important to their health and well-being.

Matthew is a proud high school graduate, a college grad and a survivor.  He has ongoing physical and cognitive challenges brought on by his disease and its treatment. He has difficulty with fine motor coordination, and a hard time listening and translating that information on paper. But he is driven to succeed and perseveres.  Instead of taking notes by hand, he uses a laptop. If he doesn’t understand something, Matthew has no problem asking for help or researching until he figures it out. Matthew will attend the survivor conference for the first time this year.

“I’m looking forward to the survivor conference,” says Matthew. “I’m curious to hear from other survivors about their experiences and to share mine.”  

In past years survivors of all ages have attended the conference and say it has helped them to better answer questions from others who have not experienced cancer.

“The conference aims to address educational and information needs in the context of social and recreational interaction – a combination we have found addresses survivors’ needs in a unique fashion, directly applicable to their daily life,” says Dr. Mark Greenberg, Senior Adviser, Policy & Clinical Affairs at POGO.

Practical approaches to their issues, like fertility and the disease’s impact on their families, are presented by leading experts, and also by other survivors. Survivors leave the conference knowing what questions to ask of their family doctor, who may never see another survivor in their practice. 

“I’m happy that some sessions are run by other cancer survivors because it’s good to know I’m not the only one going through this,” says a past conference participant.

As for Matthew, his list of questions is building.

“I’m very interested to see what I can learn that will help me in the future,” he says.

While no one wants to think about cancer after they have beaten it, the thought of attending Life After Childhood Cancer would be one that is not wasted.

Get details about the 2015 Ooch/POGO Survivor Conference.

 

Posted in In the News | Tagged 2015 survivor conference, brain tumor survivors, late effects, psychosocial, savti, survivorship

Workshop C – ‘How did you get that scar?’… and other Socially Uncomfortable Moments of Being a Cancer Survivor

Posted on January 15, 2014 by admin


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Presentation Description: 
So you’ve survived childhood cancer and you have some of the cold hard facts from doctors about what may be next for your health. But what about those socially awkward conversations and situations you may encounter as a survivor that aren’t in the medical books? Lead by two childhood cancer survivors, this workshop explored those socially awkward, embarrassing, difficult and sometimes funny questions and conversations, from responding to “How’d you get that scar?” to telling a new dating partner about your unknown fertility status.

Speakers: 
Vanessa Pastoric, BHSc, CCLS
Certified Child Life Specialist
Grand River Hospital, Kitchener

Natalie Wilson, MA, CCLS                                                                                                                                                   Coordinator and Facilitator
Young Carers Program of Hospice Toronto

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged body image, cancer, disclosure, relationships, self esteem, survivorship

Workshop E – A Leg Up: Assistive Technology for Individuals with Cognitive Challenges

Posted on January 14, 2014 by admin


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Presentation Description:
Many childhood cancer survivors struggle with cognitive challenges as a result of their diagnosis and/or treatment and assistive technologies may be able to help. This workshop provided an overview of new assistive devices/technologies available to cancer survivors that can aid and improve cognition; features to look for and how to get your hands on this technology; and complimentary learning strategies to help you reach your academic and career goals.  

Speaker:
Todd Cunningham, PhD, C. Psych (Supervised Practice)
Psychologist
Ontario Institute for Studies in Education (OISE)

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged assistive technology, cancer survivor, cognitive challenges, late effects, memory, neurocognitive symptoms, survivorship

Workshop F – Managing Your Health After Cancer

Posted on January 14, 2014 by admin


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Presentation Description:
Managing your health after cancer can be overwhelming, but empowerment is the key. That’s why POGO created the Passport to Health and Survivor Care Plan Package, a tool that is specially customized to each survivor to help them learn about late effects they may be at risk for and keep track of treatment information. This workshop provided an overview of this innovative tool, how to get it and what you need to do to successfully manage your health for years to come.

Speaker:
Carla Bennett, RN, BN
Coordinator of Clinical Programs
Pediatric Oncology Group of Ontario (POGO)

 

 

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged cancer survivor, late effects, passport to health, Quality of Life, survivor care plan, survivorship

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