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Workshop B – Communicating with Family and Friends

Posted on November 26, 2015 by admin


VIEW THE PRESENTATION

Presentation description:
This workshop provided participants the opportunity to have small group discussions about challenges around communicating with family and friends about the hard things. Topics addressed included: a) When to tell people about your cancer history? b) How to explain to others that “It is not over” and c) Learning to ask for help when you need it. Through the discussion helpful strategies and techniques were identified and compiled. The goal was for participants to leave the workshop with increased confidence and comfort in their ability to tackle the difficult conversations with family and friends.

Speaker:
Norma D’Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference, families, friends, siblings

Workshop C – Common Workplace Issues: Tools and Strategies

Posted on November 26, 2015 by admin


VIEW THE PRESENTATION

Presentation description: 
Working from “Rethinking Disability in the Private Sector,” a Government of Canada Report from the Panel on Labour Market Opportunities for Persons with Disabilities, this workshop explored the reasons why qualified people with disabilities are good employment prospects. Myths surrounding hiring people with disabilities are discounted. The pros and cons of disclosing disability status are discussed, as well as types of accommodations and what the employee can take responsibility for in the accommodation process.

Speaker:
Lori Turner-Otte, BA, RRP
SAVTI Counsellor
Pediatric Oncology Group of Ontario (POGO); London Health Sciences Centre

 

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference, accommodations, disability, disclosure, employment, jobs, work

Workshop E – Genetic Testing for Cancer Survivors: Who and When

Posted on November 26, 2015 by admin


VIEW THE PRESENTATION

Presentation description:
Genetics and genes are two words that we hear all the time in the news, especially when there are new discoveries in cancer.  What do these words really mean in relation to cancer?  And what do these words mean for survivors of childhood cancer?  Workshop participants discussed some common genetic predisposition syndromes and what we can do to determine is a family has a genetic predisposition to cancer.  Participants also discussed the pros and cons to having testing done for some of these conditions and discuss how some of these genetic tests are done. 

Speaker:
Nikki Parkinson, MSc, CGC
Genetic Counsellor, Division of Clinical and Metabolic Genetics;
Coordinator, Molecular Genetics Laboratory, Division of Molecular Genetics, DPLM
The Hospital for Sick Children
Lecturer, Department of Molecular Genetics
University of Toronto

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference, genetic testing, genetics

Life After Childhood Cancer – A Conference for Survivors

Posted on August 27, 2015 by admin

From setting life goals and dealing with the long-term health effects of treatment, to telling a new love interest about their experience with cancer, survivors of childhood cancer may struggle with many issues.

From October 16 – 18, 2015, POGO and Camp Oochigeas will present Life After Childhood Cancer, the third POGO survivor conference to address key issues survivors themselves have identified as being important to their health and well-being.

Matthew is a proud high school graduate, a college grad and a survivor.  He has ongoing physical and cognitive challenges brought on by his disease and its treatment. He has difficulty with fine motor coordination, and a hard time listening and translating that information on paper. But he is driven to succeed and perseveres.  Instead of taking notes by hand, he uses a laptop. If he doesn’t understand something, Matthew has no problem asking for help or researching until he figures it out. Matthew will attend the survivor conference for the first time this year.

“I’m looking forward to the survivor conference,” says Matthew. “I’m curious to hear from other survivors about their experiences and to share mine.”  

In past years survivors of all ages have attended the conference and say it has helped them to better answer questions from others who have not experienced cancer.

“The conference aims to address educational and information needs in the context of social and recreational interaction – a combination we have found addresses survivors’ needs in a unique fashion, directly applicable to their daily life,” says Dr. Mark Greenberg, Senior Adviser, Policy & Clinical Affairs at POGO.

Practical approaches to their issues, like fertility and the disease’s impact on their families, are presented by leading experts, and also by other survivors. Survivors leave the conference knowing what questions to ask of their family doctor, who may never see another survivor in their practice. 

“I’m happy that some sessions are run by other cancer survivors because it’s good to know I’m not the only one going through this,” says a past conference participant.

As for Matthew, his list of questions is building.

“I’m very interested to see what I can learn that will help me in the future,” he says.

While no one wants to think about cancer after they have beaten it, the thought of attending Life After Childhood Cancer would be one that is not wasted.

Get details about the 2015 Ooch/POGO Survivor Conference.

 

Posted in In the News | Tagged 2015 survivor conference, brain tumor survivors, late effects, psychosocial, savti, survivorship

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