Description
The POGO Interlink Nursing Program offers specialized oncology support to families across hospital, home and community environments in Ontario. We collect and retain your patient information in our POGO Interlink Nursing Program Database, which we maintain under the legislative authority of our Prescribed Entity designation through the Personal Health Information Protection Act, 2004 (PHIPA).
Statement of Purpose
What is the purpose of the data holding?
The purpose of this data holding is to securely maintain records of patient admissions and discharges, home visits, school meetings and other program services delivered by the POGO Interlink Nurses. Personal health information (PHI) collected in the data holding is both linked and compared with POGO’s childhood cancer database, POGONIS, to ensure accuracy, facilitate additional analysis and support potential research endeavours.
What PHI is contained in the data holding?
The patient personal health information (PHI) contained in the data holding includes:
- First, middle and last name
- Date of birth
- Gender
- Medical record number (MRN)
What is the source of the PHI?
Local hospital-specific medical records at hospital partners where POGO Interlink Nursing Program services are offered are the sources of PHI for the data holding and the information is securely submitted to POGO by POGO Interlink Nurses.
Why is PHI needed in relation to the identified purpose?
PHI is required for program planning and evaluation; to enable analysis and reporting to the Ministry of Health, other system partners and stakeholders; and verifying the accuracy of the POGONIS Registration ID for analysis and research through linkages.
Why won’t de-identified and/or aggregate information serve the identified purpose?
De-identified and/or aggregate information will not serve the identified purposes because:
- It cannot verify the accuracy of the POGONIS Registration ID which is necessary to facilitate analysis and research using linkages and
- The POGO Interlink Nursing Program Database is a patient-level, point-of-care database for a service delivery program.
Contact Us
For any questions or concerns about the POGO Interlink Nursing Program Database, please contact interlink@pogo.ca.
Data Requests
We welcome requests for the use of the data in the POGO Interlink Nursing Program Database and other POGO PHI data holdings for analysis and/or research purposes.
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Data Privacy
POGO values privacy and protects the personal health information (PHI) of children and youth with cancer, survivors of childhood cancers and their families.